Where are all the survivors?

Hey littlerosieuk1

I'm up to my gills with all these bleeping spammers (honestly, I hope that the curse doesn't come true, because then they'll come back and expect us to be NICE to them. Fooey on that!).

I'm fine but tired. I finally got a job and (along with my coworkers) spent the month of May and part of June getting the store ready to open. The doors opened on 12 June and it's been bedlam ever since.

Hope all are well.

HI Guys, I have just updated my story and mentioned that all the long term survivors have disapeared.
I can understand if everything is well with them and they are getting on with their lives.Me I seem to get one thing after another and when I go to the Cancer Unit do not see anyone I know and the people not chatty like when I was going very often they jsut sit there and willl not make eye contact I have tried.

Paul


Paul

Hi Paul, great to see you are still going, if not strong, still going. We had a really goood group didn't we? good old Deborah and Trev, John Spencer, remember Dancing with Roses, there was a SusieB I think, an Irish girl who was such fun, suddenly disappeared, Helping Dad, Julia, still posts, lovely Fran, Kathy and Tony such nice people, not to mention our star Chell, Hagg I see still contributes and lots lots more. I found that the MCF was taking over my life and sometimes became quite depressing.

I still receive the digest everyday and contribute if I think I can be of assistance. As I type this I should be sorting out the float for the summer fair as treasurer of our local primary school PTA.

We may not be with you in body but we are in spirit. Best wishes to everyone, old and new.

Hi Paul, how good to see you are still around. I guess I could be called a ".lurker" as I do look in from time to time to see how my old friends are doing. Maybe we should all get together again & keep the site going.
Are you still living in London?
After a while, when people don't post anymore, it feels intrusive to ask "anybody heard from so & so"
Keep in touch, Fran

Hi Fran, Yes strill in London was looking forward to living in Canada but with all the long term side effects of Radiotherapy I cannot work now so going there not an option anymore.
Yes I belive we lurkers should make the effort to come online more to give new commers to the elite club.
It seemed the site changed when Vinod went abroad. I found the site not the same.

Paul

Hi you guys yes I guess I am one of the old lurkers not been on here for ages but just posted on chat as I have just had an urgent referal for a white lesion soooo scared

Hi All

I guess I am one of the lurkers. Just popping in now and again to swat the spammers.

Am around for those that need me.

Vinod

That's nice to know Dr Joshi you have helped us all over the years at sometime. Hope life is treating you well. Hope to do the walk this year x

I will be at the Walk. Do say hello.

Hi Dr J, Nice to see your still keeping an eye on us all.
I am going to see a Proffessor and my Cancer Consultant today about having fat taken from my stomach and put into my neck to give me more mobility.
Believe it is quite a new procedure and not sure if I will go for it.It all depends what results I get as well from my neck biopsy on Friday !
The only good thing would be I would be able to drive better as at the moment it is hard to look round and when crossing roads.
I have seen a Consultant to the proffessor a few times and he did tests and took pictures . Believe I will get to know today if they are going to do it, Told about 3 procedures will be needed.I hate having to stay in hospital just one night.
Nice if you have any imput to this kind of procedure.

Paul

Hi Paul
Good luck for today.
I am very interested in the fat transfer procedure as I too am due to have this.
I saw the consultant in January and was give the go ahead and had the photos done but due to major NHS administration errors I have had to chase this up and get my pre op in August.

I've been away for quite a bit of June on my jollies but still here, hanging around, helping if I can :-)

Nice to see your around Hagg.
Littler, Well they tell me Sept I will have the first op and if it works maybe 2 more to follow.
Its basically to get movement in my neck.
Wish they could do my shoulder but noway.

Paul

Hello all. Haven't meant to ignore anyone but have been pretty ill and in hospital for three weeks with pneumonia, pleurisy and empyaema. No one needs this, including the chest drains and everything that goes with it. This is the first time I have sat behind the computer since coming home and it is pretty painful on the back and ribs so I'm afraid that this is a short message.

Petronel
Its good to see you back posting.
Sorry you have been dealing with pneumonia and wishing you a painless recovery.

Hi all,I'm interested in the fat transfer to the neck,I look like a strangled chicken lol.i have had this skinny neck for 15 yrs now so got used to it. I would,nt have it done noe but it's great for helping people like us look and feel better.it will do a lot for our confidence.petronal hope you feeling better now.xx

Thank you for the welcome back littlerosie. I finish antibiotics tomorrow morning - yippee! Then we will see whether they have done any good or not. Feeling a lot better than I was 5 weeks ago and am told I look a lot better - wouldn't be difficult. Still tired and fairly weak, but getting there.

The neuralgia is fairly calm (comparatively) at the moment, but I do need neck adjustment and a 'nudge' to the jaw, which is happening tomorrow. Hope it doesn't turn everything upside down again.

Hi Angie, Rose ,Hagg and all, I am going to have a fat transfer done they said in Sept but not got the date yet.
It apparantly works to help movement in the neck.
They have done the procedure many times but was told by my Consultnat they ( UCLH) have only donre 10 on Radiotherapy patients.
YTold " have first one then may need meore.
Bit concerened what I am going to look like ,well my neck but will give it a go.
I am still in London would like to be in Spain or Canada but thats not an option for me now.
Paul

Hi Paul. Good luck with the procedure. I hope it helps you.

All the best for the procedure Paul,how bad is the probs with the neck movement,I had all the lymph nodes and most of the muscle removed both sides of my neck and after surgery had to turn my whole body to look at anything . The reason I'm asking is although it's took 15 yrs in the last few years things have seemed to improve not brill but I can turn my neck more and not tight any more.takecare

All the best Paul, your experience will be the light for others who come after you.