I am posting this question under the Q & A forum as it's not exactly a follow on from previous postings.
I have been told by my Consultant that I have cancer of tongue, tonsil tissue and soft palate.
I have had two biopsies which have both come back as pre-cancerous. However the consultant says he knows that isn't the case. He now wants me to go in to have a large biopsy done under General Anaesthetic so he can tell what stage my cancer is.
He said as I have an enlarged lymph gland,it has already spread and there is no point in taking a sample from the lymph gland as it will be the same as my mouth.
This lymph gland has in the meantime gone down quite a bit and I'm worried that when he does the neck disection (which he said is needed)it may not be necessary.
He has confirmed it is a hpv related tumour but I don't know how he can even say that if he hasn't got a proper bioposy.
Originally he said it would be part of tongue removed,radiotherapy and chemotherapy and neck dissection. Now he says that I don't need surgery on tongue as they do something else. Unfortunately, I didn't ask him to elaborate as I was getting on to my next question!
I feel really confused now and obviously it's great if I don't need surgery on my tongue but it seems as though things keep changing every time I go and I still haven't had a real diagnosis.
I think maybe his plan is to keep taking biopsies every few days and then he will just tell me he has now removed it all!!
Has anybody had anything like this happen to them or may know what's going on?