Update on my condition

Hi this is Robin. I had stage 4 throat cancer and I thought I should update whats going on with me now. My speech therapyst says that I do not have the groves that help food go through your throat. Therefore, my wind pipe and throat where food go are at the same level thus making any thing I eat or swallow go into to my airways rather than into my stomach. I am doing doing throat exercises and have done Stimulation therapy thus far which still keeps me on the peg tube (feeding tube). She mentioned a surgery to correct this but I could loose my voice box. I haven't talked to anyone about that yet. I was wondering if anyone out there is having the same issues. Thanks.
Original Post
hi just lost my reply to you so will try again. Mr husband has the same problem but he has now had his peg removed, he still have the food supplements (fortucream) which he can get down without any problem but other foods have to be covered in gravy otherwise he cant swollow the foods. He is doing tongue exercises every day and as long as he has a pint of water beside him he can manage most of the time. Keep with it, the last thing you need is another op - with time i am sure it will get better - thats what i keep telling my husband.
Hello, my husband is going through back of the tongue cancer. He finished his radio and chemo back end of November 2011 but suffered with severe lympoedema (swelling of the neck) due to having surgery to remove lymph nodes (34 in total). He has for the past two weeks being seeing a lymphoedema nurse and it has made a big impact - he now has the shape of his chin back after a year - it is amazing treatment - it is gentle massage and anyone with lymphoedema should ask and insist that they get this treatment. My husbands consultants/nurses did not know about this service so ask. The sooner this is treated the better the outcome.
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