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Hi- my husband is 31 years old and he is about to undergo a total laryngectomy with a total glossectomy due to the stage 4 cancer on the base of his tongue.
We are scared and even though he has great doctors that described the surgery for us we would like to hear advice from anyone that has had this surgery or a similar one.

How is the quality of life after this surgery? My husband doesn't want to live without eating or speaking ever again but I know that hearing from someone that has gone through it might help.

Does anyone know about any devices that can help him with communication without a tongue or voice box?

Thank you for any support you can provide.

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Hi Viviana.
wishing your husband well on his operation. i had the total laryngectomy in november 2012 and am now back at work part time. i do know a few people who have had the glossectomy as well but they dont post on here. in fact your lucky to get any reply's. if you have a facebook account consider joining this group. its very active and often gets answers within minuites

Hi Viviana, Welcome to this exclusive club that no one wants to join. My husband was diagnosed with exactly the same problem way back in 2007 and is still here to tell the tale, he didn't have surgery. I would like to private message you but after spending forever trying, somehow I can't seem to do it. If you would like to send me your email, I would like to send you all the details. My email is

I know how you must be feeling at this time, and look forward to hearing from you.

Take care

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