hi all!

my best friend has tongue cancer and its spread on 2/3rd of his tongue. his tongue is swollen and often accidently comes in between his teeth which aggravates his pain.plz plz suggest something. is there any way to protect his tongue? he has already tried mouth protector but it hurts more. this pain is making him give up so soon without any fight. plz plz plz plz suggest something and pray for my friend.
Original Post
Dear Khushi,
My name is Ananth and as it suggests I am an Indian too by birth and do live in India. Though I did not have tongue cancer - I went through a pretty torrid time with cancer of the larynx which was diagnosed as stage 4 (the last stage)and the side effects have been - though the cancer is not there, I have not been able to eat or drink orally for the last eight years. You may read my story on the main page of the site - Its labled as - Ananth's Story. Once you have been through it and feel I can be of any help to you, I would be more then happy to guide you to the doctors and others who have been through the same ordeal and have been very positive about life and are coping very well.

I have appeared a number of times on NDTV and Star and my story has been published in the Today newspaper, the Metro (on cancer day) and a number of magazines in Europe. I am only mentioning this with the hope that I can cheer your friend up to the best of my ability.

Take care and warm regards to both you and your friend,
Ananth
Khushi,

So sorry to hear aout your friend. It is very difficult to deal with tongue cancer. Is your friend scheduled to have this lesion removed? Sometimes surgery sounds like the worst thing to deal with but it can cause a great deal of relief. What does his doctor suggest. I would like that there are meds that are steriod-based that could help with the inflammation. Good luck to him. Let him know that there are MANY others who have gone thru this and that our thoughts and prayers are with him.

Kimberly
thank you so much kimberly.i am really grateful for your advice and best wishes. now i am sure my friend would be good soon.i'll take it as a good sign that he is receiving all these lovely messages and best wishes on his birthday. that would really make his day.god bless you .
hey ananth,
thanks for your prompt reply. i read you story and i am really sorry to know about the tough time you and your family had. but all is well that ends well. its good that everything is almost back to mormal.i am sure your story would give my friend much needed hope and courage to start his battle.we would really welcome any advice from your side.god bless you.
Hi Khushi,

Life is still not a bed of roses Khushi as the side effects still remain - I still cannot eat or drink orally and all the food has to be put directly into my stomach in a pureed form. Though the food I eat is not what the doctors normally prescribe - I have a much better diet which keeps my weight in check and also helps me keep fit by working out.
Do get in touch with anything your friend may require of which I may be of some help. You will recieve a lot of support for your friend here and a lot of good advise - you can be well assured of that.
Take care,
Ananth
Hey Ananth!
Hope you are keeping well. I need your advice Ananth. The friend that I talked about has been admitted to Rajiv Gandhi Cancer Institute where a Dr Dhawan is treating him. His cancer has spread to his throat,chest and airpipe. Doctors say its last stage.Recently his Tracheostomy was done but thats giving him problems.The mucus and saliva has to be suctioned out quite frequently and he coughes a lot. Did u face the same problems? Is there a suggestion that you would like to give foe my friend? And Ananth please pray for my friend.
Hi again Kushi,
I know Dr. Dhawan pretty well, though I was treated by Dr. Kataria( she has changed hospitals since then). My cancer was not as bad as your friends - though it was also caught in the final stage. Once and if the tracheostomy is done - your friend will have to get the mucus and saliva suctioned as if he does not, it can be very taxing on his chest and thats where the coughing bouts begin. Yes - I too faced the same problem and luckily my wife and mum also learnt to operate the suction machine at home and that was a boon.
Have they removed his voice box? If so - they must be giving him radiation and chemo. Do you have any idea as to how much has been recommended as all this also plays a part in the gathering of the mucus and saliva. What I would suggest is also involve his family members (atleast two of them)who can help with the suction as the nurses at times get delayed and the coughing bouts start. Though they did not reccomend it - I was using tissues in wholesale quantaties. The doctors recommend gauze instead of tissue. I used to put a gauze over the tracheostomy but found tissue more comfortable and cleaner to use.
Khushi,by the way - where did they perform the tracheostomy? In Rajiv Gandhi?
I will def. pray for him and I am sure he will respond well to the treatment. If you want to contact me for any help you could call me on my mobile 9810069929 at any time. Another friend - Sonia - her mother too is there at RGCI but in her case its a no go and is terminal.
Take care,
Ananth
Hey Ananth,

No his voice box has not been removed and the Tracheostomy was done in RGCI.Last week he received radiotherapy for 5 days and from today chemoradiation would start.Even i think it would be helpful if his family learns the use of the suction machine.I am really greatful for your advice Ananth.Thanks a million.
Hi Khushi,
If your friends voice box is still there and his vocal cords are intact its really good news as I too refused to get my vocal cords removed and now have my own created device which makes my voice sound totally normal. As the tracheostomy was done just a week ago there is bound to be huge amounts of mucus and coughing. Its very normal. The suction machine in this case is a boon and will be for some time till the tracheostomy totally heals. I guess he also must be feeling miserable with the tracheostomy tube thay have inserted into his throat as suction at times through it is a bit - not painful but irritating but a must. There is no point in putting to much pressure on the chest to blow out the mucus and the suction machine does the job of removing all the mucus and hence keeping the trach as clear as possible. However, as the tracheostomy is recent and its going to take time for it to heal - he will require it once he leaves the hopsital too - hence the reason why at least two family members must learn how to do the suction, clean the machine etc.There are two kinds of suction machines available - one is the one which works on electricity and the other one bt pedal. Its best to go in for the second option as it is cheaper and does the job equally well. Another very important thing to remember is the tracheostomy tube. At the moment I am sure its being changed between two to three times a day as they get clogged very fast. Once again - here someone or more will have to learn to change the tube at home as the doctors in Delhi charge a bomb to change it each time. Luckily my doctors insisted my mother learns first and then I too learn it. The first time both she and I were petrified and landed up paying Rs.800/- just to change the tube. A friend of mine who also had a tracheostomy had a major problem as he was told that he would have to get it changed by a doctor - and the poor guy landed up shelling 2,400/- per day for two full months till I heard about it and went across and taught him how to change it on his own. I am sure RGCI is not going to give you all this information- so just keep an eye out on what they have to say.
Let me know how your friend progresses.
Take care,
Ananth

Add Reply

Post
×
×
×
×
Link copied to your clipboard.
×