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Hi everyone I’m a 44 year old female who was diagnosed with squamous cell carcinoma of the palate and sinus.  It was stage 4 but was luckily contained.  I had my right sinus, 90% of top jaw, 10 teeth and 90% of my palate removed.  I got 6 weeks of radiation and have an obturator.  I am now in the process of making my final obturator.  Is there anyone with a similar case? 

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Hi Fairy

I've just found this site. I had my right upper jaw removed due to SCC 5 weeks ago. I received ths diagnosis at the beginning of December and it turned my world upside down. I had the op at the end of December and had a fixed obturator. I went back after 3 weeks to have a removable one put in and finding it very difficult to talk. This one isn't a good fit and have been told it'll be about 6 mths before I get the final version.

Any tips, advice or chit chat would be welcome. I'm still getting my head round all this.

I live in Karachi, Pakistan but got my treatment done in London. You re lucky u didn’t need Radiation. That just makes things ten times worse. My mouth shut down as well and I was on a feeding tube as well for a while. Lost 20 lbs but now with the new final obturator, am eating better but there has been a little pain for the last week or so. Did u need chemo?
I had ten teeth removed and most of my palate removed. I have a removable one out since November but it’s not the most comfortable thing. I guess this will be a constant thing. I had a fixed one for about a year cause my mouth opening was too small after radiation. I had to do certain exercises to increase the opening before they could make a removable one.

Mine doesn't fit to good and go back to the dental hospital to have it tweaked. They said it could be about 6 months before final one but doubt it will be much better than what I've got. I can eat ok but I can't talk very good. I'm using a therabite to help open my mouth further but its very slow progress. Another woman had the same op and had radiotherapy and her mouth doesn't open much. She still has fixed obturator, since October, she doesn't know if they'll do a removable one or reconstruction. I wasnt given that option. Does your mouth open ok now and have you got your final one?

Fairy posted:

Hi everyone I’m a 44 year old female who was diagnosed with squamous cell carcinoma of the palate and sinus.  It was stage 4 but was luckily contained.  I had my right sinus, 90% of top jaw, 10 teeth and 90% of my palate removed.  I got 6 weeks of radiation and have an obturator.  I am now in the process of making my final obturator.  Is there anyone with a similar case? 

Hi @Fairy, it must be really hard for you to cope up with the pain of treatments. Does it hurt while eating? I hope you'll get better soon and will be able to eat like before. Take care of yourself & be positive, keep fighting.

Lots of love & Best wishes!

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