as some of you know my dad has had total laryngectomy and now his tumor is growing extensively as far as we know. he is on the following medication everyday:
- MST (60/60 - he cannot up this as it makes him out of his head and we are not at a stage yet where this is appropriate as we need him with us as much as possible)
- nebs: saline, salbutamol, atrovent
- oramorph (he has about 200mg on a bad day)
- amitriptyline (he started this today because we read on here that it would help with neck/ear pain that drives dad crazy - we had to recommend this to them!!!! and they agreed)
he had lorazepam but he cannot have this anymore
at the moment he is experiencing bad shoulder pains, and we feel that the pain on the whole needs addressing. he has awful neck and ear pain and headaches and when he gets them there is nothing we can give him or that he can do to relieve it that we know of. he has 20-25mg of oramorph a time, our loros lady said he can't take more than 25mg at a time. but we think maybe he has become morphine resistant as he has been on it since october last year.
if anyone could recommend any better drugs??? he doesn't want a pump though.
we are having no contact with the hospital, all we have now is our gp and our loros lady but she is useless so we are basically on our own. we asked about a palliative care team and they said they are our palliative care team - our gp and loros lady????!!!!! mum asked the doctor to set up an appointment at loros for better drug access and the loros lady has set up the appointment for in 3 weeks time - we may not even have 3 weeks. it seems they are dragging their heels, and we are up with dad every single night because he is in so much pain.
also can anyone tell us anything about erbitux in this situation?? can it be used alone for even a little bit of prolongation - or anything??