A friend gave me the name of 'Mucodyne' syrup and my GP who is always glad to hear of something new (as long as it's legal) wrote out a prescription for it. My mucus has been so thick in the morning first thing, and when walking by the sea with the dog. I took it for the first time yesterday and it has thinned the phlegm out amazingly.
I also strained my ribcage with coughing tis mucus, making me afraid to cough, so GP gave me 'Voltarol'suppositories (50mg) as opposed to capsules and syrup for easier and quicker effecvt. Last night I had the best sleep in months. Nine uninterrupted hours. My partner was pleased about that too because so did he! I am not a raving medicine freak but thought I would pay for my keep this way and hopefully help somebody.

My good wishes to Krishan who took time on his big day to send me site help.
Ishbel
Original Post
Hi Ishbel, thanks for your earlier posting regarding mucus.

In my foolish, self-centred way I was beginning to think I was the only one with mucus (I call it gunge) problems.

I was also most interested to read of your straining your rib-cage. This really does sound like my problem.

May I ask if my situation is anything like yours?

Anyway here goes.

I seem to have 3 peak periods with the mucus. Firstly when I first get up in the morning, secondly (usually not too badly) around lunch-time. Worst of all is early/late evening.

Choking feeling, gasping for breath and straining to fetch the stuff up.

Then about 6 weeks back I started with a pain in my right chest. It felt like I would imagine a broken rib to feel like. Went to GP, sent me for x-ray - clear.

But still daren't lay flat in bed and have to try to sleep eggectrively sat up straight.

Did you have anything like the foregoing?

Seeing GP again and I'm taking a print of your posting for his comments.

Sorry to be a pain but your comments could well be a real help.
Hello Ishbel

Looks like you may stumbled onto something that might be of use to others with a 'mucus problem'! Smiler

Mucodyne is currently being used for other purposes: glue ear, respiratory tract disorders (disorders of the breathing passages) characterised by excessive or viscous mucus, including chronic obstructive airways disease, etc. Roll Eyes

You can get it in capsule forms Capsule Form and Syrup Form. The Mucodyne Syrup is a clear, amber syrupy liquid smelling of rum and slightly of cinnamon. Big Grin

I suggest you ask your doctors about it, try it out and report back. Hopefully, it will help others with the problem too. Cool

Best wishes
Vinod :coffee:
Ishbel posted May 13, 2004 06:07 PM:
quote:
Hello Pikeman,
Your mucus-munge whatever, worst hours of the day are exactly like mine although, touch wood, I don't actually feel breathless. I just want to cough and cough and cough up and when I do--well--it hurts my ribcage terribly.
Today, out of the blue, or out of my tummy, emerged a hernia to my horror. Down in the groin area. I had not noticed it until going to the loo this morning where I had to strain becauase of constipation caused by anti-biotics to relieve coughing and so on....This is called 'vicious circling'!
I rushed round to GP who confirmed that I had torn a bit of muscle while coughing and some intestine had poked its way through.
At the moment he doesn't advise considering a hernia op.He manipulated it back and it hurt for a moment only. Swelling still there but if necessary he will get me a hernia truss.
(All this because of a husky throat 5 years ago)!
But the good news was that there was no likelihood of the said hernia becoming cancerous.
Mucus has been my worst part of the illness really apart from not eating enough. Doctor said hernia also caused by thin-ness of skin caused by 'malnutrition'. Whatever you do don't hold it back or it could build up and cause a lung infection. Have a good old hack when you have the place to yourself.
Regards Ishbel
quote:
Originally posted by Dr Vinod K Joshi:

Hello Ishbel

Looks like you may stumbled onto something that might be of use to others with a 'mucus problem'! Smiler

Mucodyne is currently being used for other purposes: glue ear, respiratory tract disorders (disorders of the breathing passages) characterised by excessive or viscous mucus, including chronic obstructive airways disease, etc. Roll Eyes

You can get it in capsule forms Capsule Form and Syrup Form. The Mucodyne Syrup is a clear, amber syrupy liquid smelling of rum and slightly of cinnamon. Big Grin

I suggest you ask your doctors about it, try it out and report back. Hopefully, it will help others with the problem too. Cool

Best wishes
Vinod Coffee

Hello Dr Joshi, I'm not actually a cancer patient, but I stumbled across this message thread when searching for information about mucus problems. The experiences of Ishbel and Pikeman sound very much like my own case history. I even cracked a rib straining to cough up mucus two years ago! And I know very well the choking, gasping feeling Pikeman reports. I've been sent for all sorts of tests by the chest clinic at one hospital (x-ray, CT scan, bronchoscopy), all of which came up negative. I'd more or less resigned myself to having to live with it, but when I read your exchange I thought I'd like to give Mucodyne a try, if others have had good results. My GP, however, is unwilling to prescribe it: according to her, it is only licensed for chronic obstructive airways disease. Is she wrong? Your comments indicate it has wider benfits for a variety of mucus-related complaints.
Best wishes,
Simon.
I have always suffered mucas problems in the throat to some degree but has become much worse over the the last two years and suffer in the same way as the previous posts describe .When out of the country ie holland 4 days at a time the mucas goes away and as soon as i return to the UK it comes back , i have also just come back from India and again cleared completley but this time i have not taken any dairy products and at the moment the mucas has only come back a little . my son who is 14 is also suffering with the same problem and is driving him crazy . also does any one know if stress also contributes to the mucas problems as i believe there is a connection .
You asked me to report back: I did finally persuade my GP to prescribe mucodyne (capsules), and tried them for a month (varying between 1 capsule 4Xday and 2 caps 3Xday). However they did not improve my mucus problem, I'm afraid. Still finding it nearly impossible to cough the stuff up. Oh well, thanks anyway for the tip.
Simon Smith
Hello
I am a little late adding to this thread, I have only just joined the forum!
I have completed my treatment and have no real problems with mucus at the moment. However, during my radiotherapy treatment I had real problems with mucus in my throat when my saliva glands stopped working. I found the only way I could clear my throat was lying on my front (on the bed) with my head dangling over the side and then to clear my throat into a large pudding bowl!! Pretty disgusting I am afraid, but it worked.
I have tried Mucodyne and found it most helpful, It was not prescribed or offered by my cancer specialist (despite complaining about mucus) but was suggested by a pharmacist friend of mine.

Hope this helps
I too have just joined the forum and I also after treatment had an awful time with mucus, my consultants didn't recomemmend Mucodyne to either but just said it would eventually sort itself out, but I was getting so depressed spitting constantly into a tissue and being reguarly sick from the gunk forming in my throat. Luckily my GP got my local pallitave nurses to pop in & they got the mucodyne prescribed along with mild steroid to start and this worked wonderfully for me. The mucus has now gone & I now have the dry mouth!!!
Hi,

Very interesting thread this. Even though i'm only 25 I have visited the doctors roughly 8 times about phlegm at the back of my throat. I've had it for about 10 years now and to honest, i've had enough, it's really tiring me out. Sometimes it's so bad I wake up choking on it in the night!!!

I havent had any 'rib ache' as reported by some people, but I do wake up with a large amount of it in the morning. In the past it's been so bad it's been brown, green, red and even black!

The doctors keep saying that it's the gland at the top and back of your nose which is dripping down, but i'm not convinced....i don't ever have a snotty nose of anything like that, it seems to be more in my chest, even if i breath out heavily some comes out..

All i've ever been given is sprays for my nose. I'm going to visit again this week, do you think i should suggest that it's in my chest and mention that mucadyne syrup?

also, I guess it could be from my sinuses, as when I go through stages of having very painful sinuses with the phlegm...this causes my whole nose and face to hurt, and thus causes headaches.

I really can't bare it anymore.
I have a theory.
Maybe it's wrong, but my theory is that my problem is caused by yeast or fungus.
I usually wake up choking and spitting within 30 minutes of falling asleep. Spitting repeatedly, blowing my nose as strongly as possible, and eating something(doesn't matter what...cheese is OK) helps, and then often I can go back to sleep for 5 to 7 hours.
This condition used to be worse daytimes, but has improved, or at least hasn't worsened.
The smell of the mucous, especially the dried mucous in my nose is distinctively bad, but I doubt that it's bacteria. It reminds me more of the smell of athlete's foot.
The same mucous affects both eyes, which often sting, and feel as if I have rubbed detergent into them. The mucous also causes a stinging or burning sensation on my tongue.
I've had helical CAT scans 2 years ago, checked by an ENT specialist who found nothing wrong, but who offered to cauterize my turbinates.
I've had one head cold in the past 15 years.
That head cold was very mild, and ended in less than 7 days. While I had that head cold, my normal choking symptom was gone.
My theory is that the head cold virus was killed by the more powerful fungus, or yeast, that lives permanently in my frontal sinuses.
That's just my theory.
I'm considering dosing myself with flucanazole.
I have a can of Mycota athlete's foot powder, and recently, when I hold that can up to my nose, my condition seems to improve briefly.
I think the tiny plants know that, if they don't back off, I could kill all of them.
quote:
I have a can of Mycota athlete's foot powder, and recently, when I hold that can up to my nose, my condition seems to improve briefly.
I think the tiny plants know that, if they don't back off, I could kill all of them.


Mycota contains two ingredients, zinc undecenoate, undecenoic acid. Both of these have antifungal and antibacterial properties.

This preparation is for external use only!. Eeker
Thanks for your reply, Dr. Joshi.
Of course I read the ingredients and the external use warning, and was only using the Mycota to try to threaten the yeast(if yeast are even the problem).
I do have a form to take to the local MedLab, for analysis of the mucous from my nose and mouth(which is the same), and will reply with the results of that analysis, when it's been completed.
Thanks again.
Hi,

Any new or updated tips for mucus? My Dad is dinking the pineapple juice as suggested here regularly.

Pre-surgery (ND) he had a phlegm issue (not as bad as during treatment); he tried the Mucinex tablets and the Guaifenesin liquid; sometimes he felt they helped; hard to say. (Tablets too big to swallow now).

Now post-surgery his mucus problem has acted up again; and he finds it hard to eat at times; he's coughing and spitting all day and he's up every hour at night.

Thanks
LisaB
We found a few things that have helped tremendously in dealing with the nightmare of the stringy/ropey/rubber cement-like saliva from Stephen's radiation treatments:
~Gargling with creamed papaya diluted with water (enzymes in papaya thin out the saliva a bit). Stephen still can't swallow properly due to the amount of stringy saliva still present, but gargling with the papaya and then spitting it out brings up the stuff way down in his throat with much less effort (previously, he was getting strained back muscles and tossing up food as well). At first, he used papaya juice, which was effective but it stung a bit because of having apple juice mixed in. His sister found creamed papaya in a natural food store, and that has worked even better and has very little if any sting.
~Using a portable suction machine (with a 1/4 inch bulb tip). Combined with the papaya helping to bring the stuff up, this has been a sanity-saver and allowed us to actually start getting some sleep. A tip from my mom, a nurse: Fill the container with a bit of water so it’s easier to empty out and clean. (With a prescription from our doctor, we were able to rent one, with insurance covering much of the cost.)
~Staying very well hydrated -- aiming for 3 or more liters of fluid a day through the PEG tube -- and taking guaifenesin (100mg) three to four times daily with 8 oz. of fluid.
--Susan
I have just undergone a radical prostatectomy. Immediately after the surgery, my throat became filled with phlegm, making it hard to breath. Even though I expressed concerns (more like terror I was told) that I would strangle during sleep, I could get no relief from the nursing staff. My physician drove to the hospital at 1 AM to address the problem, but he too had no answer.

There is no doubt that the pain medication and anti-anxiety drugs (they were trying to allow me to sleep) only exaccerbated my problem, and I lost it.

My doctor assured me time and time again that I could breath, but everytime I tried to relax, the crud would shut off my wind.

Finally, I drifted off and slept for a few hours..

This may not be a good example because of all of the collateral issues, but I still wonder why medicine has no answer to "clear the throat"? This trauma set my recovery back a few days and I probably made a total fool of myself.

Anyway, I have the phlegm problem several times per year and coninue to search out ways to relive the mucus. Mine is also very thick, rubbery and usually about the size of a quarter.

thanks for listening.
Well, I have to say that Mucodyne (Carbocisteine) has effectly helped to change my life. I know that sounds a bit dramatic, but after decades of wheezing, being out-of-breath, unable to even run for a bus without coughing so badly that I have on many occasions vomitted, plus the almot constant ear-infections. My english doctor 3 years ago, said have you ever tried this, and suggested Carbocisteine in a capsule, I said no I haven't but at this point I would willingly try absoulutely anything.. In under 5 days, I noticed that my sinuses had began to dry and clear, a lot of phlem had began loosening and I was able to cough it up, and I felt for I think the very first time in my life, COLD air cooling my lungs.
However, thats where the good stuff comes to an almost full stop, because since moving to Holland, my GP (huisarts) will NOT prescribe carbocisteine. The only way I can find it , is to constantly buy a mucodyne cough syrup made by NATTERMAN, I'm not advertising this product in anyway, but if you live in holland and find that you GP will not prescribe carbocisteine either, then maybe you could try this alternative.

If anyone here in Holland knows of anywhere I can get the capsules, I would be very grateful if you could let me know how and where. Many thanks.. Steve
i have had this cough every day and night for the past 2 years every time my chest gets xrayed and the doctor says my chest and lungs are clear but this coughing with phlegm every night is exhausting last week my doctor gave me mucodyne and certainly the phlegmhas got thinner but my throat is very sore has anyone else had this it feels like something is there when i swallow
Hi there,

Sorry you are going through this. I remember my partner really suffered at the end of radio and I called the hospital and was told it should resolve in about 14 days. I think they were about right.

Good luck and hang on in there. Things will get better in the very near future.

Cathy
Hello, I became sick a year ago and after the illness passed, the hacking cough remained. I coughed very bad for like 6 months. I stil continue to cough up thick phlegm and its worse in the morning and after eating. Sometimes when I go a couple hours without drinking something I cough up something that looks like foam. When I lay in certain positions I can feel something that feels like crackles in my right lung!!! Do anyone have any suggestions!
Hello,

Here is information from awhile back regarding what Stephen found to be helpful with the horrendous thick saliva (we posted this elsewhere on this site a few years ago, but I'm not sure where, so posting again):

"Re Help with Tenacious Phlegm/Stringy Saliva:
We found a few things that have helped tremendously in dealing with the nightmare of the stringy/ropey/rubber cement-like saliva from Stephen's radiation treatments:

~Gargling with creamed papaya diluted with water (enzymes in papaya thin out the saliva a bit). Stephen still can't swallow properly due to the amount of stringy saliva still present, but gargling with the papaya and then spitting it out brings up the stuff way down in his throat with much less effort (previously, he was getting strained back muscles and tossing up food as well). At first, he used papaya juice, which was effective but it stung a bit because of having apple juice mixed in. His sister found creamed papaya in a natural food store, and that has worked even better and has very little if any sting.

~Using a portable suction machine (with a 1/4 inch bulb tip). Combined with the papaya helping to bring the stuff up, this has been a sanity-saver and allowed us to actually start getting some sleep. A tip from my mom, a nurse: Fill the container of the machine with a bit of water so it’s easier to empty out and clean. (With a prescription from our doctor, we were able to rent one, with insurance covering much of the cost.)

~Staying very well hydrated -- aiming for 3 or more liters of fluid a day through the PEG tube -- and taking guaifenesin (100mg) three to four times daily with 8 oz. of fluid."

Most important - keep in mind that the huge amount of thick saliva WILL lessen after a while (as I understand it, it's a result of the radiation damage to salivary glands so they are not able to produce the thinner saliva, thus just the thick stuff). How long it goes on depends on the person and the amount of rays received. (Stephen received maximum-strength radiation, so his symptoms lasted at least a couple of months - which sounds unbearable, but you can make it through it.)

We're approaching the milestone of five years since the end of Stephen's radiation and chemotherapy treatments. Just after treatment, it was almost impossible to imagine Stephen being recovered and back to (somewhat) normal life, teaching music theory and composing again, but here he is. The treatment was almost indescribably more than awful, but it was definitely worth it.
--Susan
Just noticed my previous post above...! Oops. A few encouraging words included below, so may be worth a read anyway. Sending strength and hope to those of you currently going through treatment and recovery.

quote:
Originally posted by Susan (and Stephen):
Hello,

Here is information from awhile back regarding what Stephen found to be helpful with the horrendous thick saliva (we posted this elsewhere on this site a few years ago, but I'm not sure where, so posting again):

"Re Help with Tenacious Phlegm/Stringy Saliva:
We found a few things that have helped tremendously in dealing with the nightmare of the stringy/ropey/rubber cement-like saliva from Stephen's radiation treatments:

~Gargling with creamed papaya diluted with water (enzymes in papaya thin out the saliva a bit). Stephen still can't swallow properly due to the amount of stringy saliva still present, but gargling with the papaya and then spitting it out brings up the stuff way down in his throat with much less effort (previously, he was getting strained back muscles and tossing up food as well). At first, he used papaya juice, which was effective but it stung a bit because of having apple juice mixed in. His sister found creamed papaya in a natural food store, and that has worked even better and has very little if any sting.

~Using a portable suction machine (with a 1/4 inch bulb tip). Combined with the papaya helping to bring the stuff up, this has been a sanity-saver and allowed us to actually start getting some sleep. A tip from my mom, a nurse: Fill the container of the machine with a bit of water so it’s easier to empty out and clean. (With a prescription from our doctor, we were able to rent one, with insurance covering much of the cost.)

~Staying very well hydrated -- aiming for 3 or more liters of fluid a day through the PEG tube -- and taking guaifenesin (100mg) three to four times daily with 8 oz. of fluid."

Most important - keep in mind that the huge amount of thick saliva WILL lessen after a while (as I understand it, it's a result of the radiation damage to salivary glands so they are not able to produce the thinner saliva, thus just the thick stuff). How long it goes on depends on the person and the amount of rays received. (Stephen received maximum-strength radiation, so his symptoms lasted at least a couple of months - which sounds unbearable, but you can make it through it.)

We're approaching the milestone of five years since the end of Stephen's radiation and chemotherapy treatments. Just after treatment, it was almost impossible to imagine Stephen being recovered and back to (somewhat) normal life, teaching music theory and composing again, but here he is. The treatment was almost indescribably more than awful, but it was definitely worth it.
--Susan

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