Lichen planus and squamous cell carcinoma

Hi,

I am a 50 yr old female, never smoked and don’t drink too often (maybe twice a month).  I had a sore on the side of my tongue for over a year (about 16 months) and I thought it had to do with lichen planus.  Finally had biopsy and it was squamous cell carcinoma.  This was diagnosed Dec. 19th 2018, had MRI Dec. 27th and saw oncologist Jan. 4th 2019.  He operated Jan. 14th 2019 and did a left partial glossectomy (about 1 cm deep and all around the sore which was about 0.5 inch x 0.75 inch). It does not appear that it spread so no chemo or radiation.  

The oncologist said that after 5 years he usually stops following patients but because of the oral lichen planus, he’ll keep following me.  That scares me a little bit because that means there’s a good chance it could come back!?  I hope not!

If anyone else has had cancer because of lichen planus, I’d really like to hear from you.

Liette

Original Post

Hi. We are in the same position.  I had the same surgery and treatment over. A test ago and also have LP.  

Many people have LP and like you we all worry.   I’m not a surgeon or oncologist but I just make side I have good oral health and also try to keep my anxiety to the lowest.  I avoid stressful situatikna because as I understand it LP is related to a breakdown of the Amune system.  Which I attribute to some of my problem   

I also had some tongue trauma in the months leading up to the diagnosis, I believe that was contributory   

There is a FB page too called tongue cancer survival.  There was a lengthy post about LP on there  

finally, you and I have been fortunate   Live life to the full now   It holds no promises.  Enjoy it and get back what you give out   

Much Love.  Take care  

 

 

Liette posted:

Hi,

I am a 50 yr old female, never smoked and don’t drink too often (maybe twice a month).  I had a sore on the side of my tongue for over a year (about 16 months) and I thought it had to do with lichen planus.  Finally had biopsy and it was squamous cell carcinoma.  This was diagnosed Dec. 19th 2018, had MRI Dec. 27th and saw oncologist Jan. 4th 2019.  He operated Jan. 14th 2019 and did a left partial glossectomy (about 1 cm deep and all around the sore which was about 0.5 inch x 0.75 inch). It does not appear that it spread so no chemo or radiation.  

The oncologist said that after 5 years he usually stops following patients but because of the oral lichen planus, he’ll keep following me.  That scares me a little bit because that means there’s a good chance it could come back!?  I hope not!

If anyone else has had cancer because of lichen planus, I’d really like to hear from you.

Liette

Hello Liette

My dentist diagnosed Lichen Planus Approximately 25 years ago and I really had no problems associated with this apart from occasional soreness if I ate spicy foods.

In 2010 my dentist spotted an unusual lesion in my left cheek and I was referred to hospital where Squamous Cell Carcinoma was diagnosed.

I have not smoked for over 30 years and do not drink other than on social occasions.

The cancer had spread into my lymph nodes but the surgery and adjuvant radiotherapy worked well and I was clear for the next 8 years - leading a full and normal life apart from a slightly reduced mouth opening caused by Trismus.

In April 2018 on a random visit to a hygienist further problems were identified and a second squamous cell carcinoma was diagnosed. My consultant is of the option that the reocurrence is associated with Lichen Planus.

I have had further radical surgery including fibula free flap for my upper jaw but am now recovering.

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