Hi everyone

My name is Mark and I have just found this site and forum.

A little about my situation 

I am 44 years old and in 2014 I was diagnosed with cancer of the tongue.

It was discovered after months of persistent earache,it was discovered deep in the tongue base and was pushing against a nerve that was causing the earache.

I had 6 weeks of chemotherapy and radiotherapy ending in mid December of that year.

Was told in March 2015 after biopsy that no signs of cancer and all looked well.

By September of the same year I became symptomatic again and by January 2016 it was discovered that the cancer had returned.

I was given 2 choices,palliative care or surgery.

I have a young family so I opted for the surgery.

April 2016 (4 days after my 42nd birthday) I had an operation to completely remove my tongue and voice box,relocate my windpipe to my neck and remove muscle and fat to reconstruct the floor of my mouth.

Nearly 3 years on from the op and I am still here.

It had been an extremely difficult journey,there have been some incredibly dark days however all of that is trumped by the fact I get to spend time with my wife and watch my family grow up.

I am on this site for 2 reasons

To share my experiences and hopefully be able to help others

And to get help and support myself.

Many thanks for taking the time to read this.


Original Post

Hi Mark, I have just been diagnosed with base of tongue cancer. Been told my only chance is surgery to remove my tongue and voice box, my consultant is not confident of the outcome and I have been trying to find someone who has had the surgery, would you be willing to share your experiences with me.

Hi, Mark. Your strength is remarkable. My 57 year old husband was diagnosed in March 2019 with squamous cell carcinoma of the base of the tongue. Because of the size of the tumor and because it was stage 3, doctors recommended surgery. They removed 85% of his tongue, one tonsil and all of his lymph nodes. The surgery was brutally hard on Bob but he came through it and went on to six weeks of chemo and radiation. Treatment is finished now and we begin the wait to see if it was successful. There have been some very dark days for us as well but we are trying to stay positive. Thank you for sharing your experience. It has given me hope that Bob can beat this. Our son is getting married next spring and I pray that we will all be able to celebrate together. I wish you all the best and pray that you will have many more happy years watching your children grow.

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