Hi

The Rarer Cancers Foundation have been commissioned by the Department of Health to undertake a study looking at:
  • how people were diagnosed with a rarer cancer
  • what symptoms they experienced
  • how long symptoms persisted before they saw a doctor
  • how the doctor responded to these symptoms
  • how rapidly the cancer was diagnosed.

Rarer cancers it means any cancer other than breast, lung, colorectal and prostate. Mouth (head and neck) cancers are rarer cancers. The study requires a survey of those patients who attended a GP practice in England only at any time between 7th November 2003 and 6th November 2009 inclusive. It will help to make a real difference to the outcomes for those diagnosed with rarer cancers.

I would therefore be grateful if you could please complete the survey found at: http://www.surveymonkey.com/s/R3ZJRYR. Your feedback as a mouth (head and neck) cancer survivor is vital to ensure our views are represented.

Thank you in advance for your help.

Best wishes

Vinod
-
Dr Vinod K Joshi
Founder & Chief Executive
Mouth Cancer Foundation


p.s. If you have any questions on this then please do contact Debbie at the Rarer Cancers Foundation at DebbieD@rarercancers.org.uk.
Original Post
Hi, Dr Joshi,

I just tried to do this survey but found that it really wasn't appropriate in my case as it refers to visits to a GP practice. I never saw my GP with my symptoms - it was picked up by my dentist who referred me to an oral surgeon who in turn referred me to my consultant who carried out the biopsy etc. It strikes me that this will be the case for a lot of head and neck cancer patients. Is there any way we could still take part in the survey or should I just email Debbie pointing this out - I only just saw her email address at the bottom of your post.

Thanks and best wishes
Sue

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