In May last year I was diagnosed with stage iv SCC in the tongue (T4 N2b M0). I had a total glossectomy in August 2019, neck dissection (79 nodes removed), split mandible, 10 teeth removed, radical free form flap and a skin graft. I was 39 and told I would never speak again and that I would need a permanent trachie and permanent feeding tube.
I've had 33 fractions of radiotherapy, 2 chemo (cisplatin) and 12 immunotherapy (2 pre surgery and 10 post) and I lost 7 stone in weight.
13 months on I no longer have a feeding tube or PICC line, my trachie was removed 1 week after my surgery, I talk with a speech impediment and I can eat a roast dinner (I just need lashings of gravy and a lot of water). It was hard work, so much hard work. OC recovery is 100% a marathon.