G'day

neilmpennyMember

My name is Neil Penny from Australia. Just discovered this site. I was diagnosed in April and operated on the day before my 58th birthday. So eight weeks post op and still mending. I had two SCC tumours, one on the tongue and one in the floor of the mouth. I lost a big chunk of my tongue, floor of my mouth and a portion of the upper throat. Also lost a good portion of my thigh muscle. I consider myself lucky as I found it early. It was a T2 (6mm diameter) and the testing of the neck glands and the margins of what they took out found no cancer cells. Therefore no chemo or radio. As I said, I consider myself very lucky. I can communicate, though of course like having a lisp on steroids lol. Planning a YouTube cooking channel.

7/29/1911:17 AM

❤️ 1

Original Post

Replies sorted oldest to newest

DebraMember

FHi Penny,

Sorry to hear this news. I am 6 months on from surgery to remove a T2 and precancerous cells from my tongue. I had 60% of my tongue removed, lymph nodes from the right side of my neck and reconstruction using a radial forearm flap. Like you, my lymph nodes were clear as was the margin of the tongue so no further treatment. I am eating normally now and my speech is improving but I have a heavy lisp and still struggle with certain sounds, especially words beginning with S! I love your positive attitude.

I wish you every success with your cooking channel! You are very brave to be speaking on YouTube! Make sure you put the link on this forum!

8/9/1910:26 PM

❤️ 0

neilmpennyMember

Hi Debra,

Hi, how are you? Your proceedure sounds pretty much the same as mine.

I did end up creating that cooking channel and have started making and uploading vids.

If you are interested, the address is here; https://www.youtube.com/channe...YYsmBfQ1tbvJaf_V2PgA

It is a little rough, but I hope to improve the production and develop a style.

Regards,

Neil Penny.

10/2/191:58 AM