I have been searching this site as well as others for the last few days now. I can not seem to find anyone with the same specific problem or diagnosis as mine.
I am a 37 year old female. I am married with two kids. I have been with my husband for the last ten years. I am not a smoker or a drinker. About a week ago I had a suspicious white legion removed from the lateral right side of my tongue. (not the tip or the base) Neither my dentist or oral surgeon thought anything of it. Neither did I. He removed about 1cm x .7cm x .2. Five years ago when I was pregnant with my first child, the oral surgeon found what he thought looked like lichen planus in the same spot. Due to pregnancy, he did not biopsy this. I understand that this is an auto immune condition. Time went on, I think it remained for a few years, but I went on and had a second child almost two years ago. I see my dentist faithfully every six months. No one mentioned the lichen planus in a while, but suddenly in about a months time, in the same place, there was the appearance of this new lesion which was more concentrated in color and size than lichen planus. This is the lesion that was removed.
Needless to say, the oral surgeon and my dentist were stunned when the lab. report came back with a dianosis of:severe squamous dysplasia/carcinoma in situ with severely dysplatic tissue extending to the margins of legion."
Of course I scoured the internet to learn what this all means. I am so confused. I have an appointment with a surgical oncologist who specializes in ear nose and throat. This is two weeks away. In the mean time, I have been told by my dentist, oral surgeon and a medical oncologist that this is serious and needs to be taken care of. I was told it is the same dysplasia found in the cervix, and it is most likely caused from HPV. Now for my questions:
17 years ago, I had cryosurgery to remove abnormal cells from my cervix. I was young and did not ask any questions. HPV was never mentioned. It may have been before they found the link between cervical cancer and HPV. I have never had an abnormal pap smear since.
Could the carcinoma in situ on my tongue be caused by the same virus as the cervical dysplasia I had so many years ago. Or, is this un-likely to be the case.
Is there a chance that the new diagnosis in my mouth could have been caused by the lichen planus? I am just having a difficult time with the idea that it is HPV related. I am a responsible, hard working woman. I have 14 years of teaching and again, have been with my husband for the last ten years. If it is HPV, and not related to the cervical dysplasia 17 years ago, than where would this new infection come from? The thought is just so disturbing to me. I can accept any other reason. And like most people, I am sleep deprived and under stress, which from my understanding can compromise the immune system.
I am sorry to be so lengthy in my message, I just did not want to leave anything out. Any insight or advice from the DR. or other members is welcome.
Thank you so much and good luck everyone!