My husband has a biopsy this week and results on 4 June. He is 3 months post treatment 5 weekly chemo, and 6.5 weeks of daily rt (standard rt and no induction chemo) A recent camera observation and MRI scan has picked up abnormalaty and immobile vocal cord. His consultant at Poole hospital has said that if the cancer is still there it is most likely that he will have his larynx and pharyx removed. Can anyone advise where in the UK or perhaps the EU they specialize in this area and do the most advanced surgery which could perhaps still preserve his voice. We feel in such shock that should he need surgery it would be done within 2-3 weeks (which has been advised) that we have no time to look at the options. Where on earth do we start. I understand that under the EU it is possible to have surgery in other countries covered by the NHS. His type of cancer has one of the lowest survival rates of head and neck cancers and I HAVE to look into everything, please advise if you can
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Hi Julia. i was hoping somone else would reply but they havnt. i had my larygectomy in november and have met lots of good people who have survived and carried on with a productive life since their operations.some of them had the operation over 20 years ago.

your husband has had a lot of difficult treatment already and in my opinion ignoring his consultants advice and trying to preserve his voice is going to reduce his chances of survival enormously. i have not got my voice back yet and use an electronic larynx to comumicate. it is not perfect but it is adequet and i can make most people understand me. i am on the waiting list to have the TEP valve fitted so should be able to comunicate better then. my tumour was too large to do it at the time of the operation as you have said his type of cancer has the lowest survival rate. ignoring the consultants advice will give your husband a lower chance of beating it. your consultant would not have given that advice without a lot of thought.

whatever you decide i wish your husband all the best.
a good site to get support and advice is the http://www.facebook.com/groups/laryngectomy/ they really helped me when i was going through radiotheraphy. its a very active site.

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