Okay everyone - I think this is worth a bash - let's seeif we can creata Dummies guide to oral cancer - all your top tips in one place. I will kick this off though I am one of the big Dummies!
My top tip is don't wait for hospitals and doctors - chase them and hastle them. I know they are very busy and work extremely hard BUT it is your life in their hands and mistakes DO get made as I know from my own and others experiences. I could still be sitting around waiting for a letter for a PetScan - that would bever have arrived because they forgot to post it. We only found out becasue we rang to hastle after a few days - imaptience is a virtue - and they had forgotten me altogether thinking someone else was dealing with it. I only got reffered to the hospital in the first place because my wife pushed the dentist. So tip one HASTLE HASTLE HASTLE - do not think that you are anything more than a number and a name on a list - even if they are all very nice people - and they are.
Come on the rest of you - lest get that guidebook together!
Hope I am in more pain than you are