After reading these posts, I become more thankful that my T2 N0 tongue cancer required no additional treatment. There was chatter amongst my MSK team about doing RT, largely because of the presence of a 9mm perineural invasion. The team was split on my prognosis. Thankfully an IMPACT study of my tumor revealed that it wasn't overly aggressive, as tumors go, thereby alleviating the perineural invasion concern. So all clear, no further treatment!
My neck and tongue surgery was tough, but only for about a week, and mostly the tongue. Dr. Singh removed 54 lymph nodes from my left neck and a quarter of my tongue. No post-op pain in the neck, tongue pain was gone after one week.
My heart goes out to all of you who underwent RT for mouth cancer. The focus of this vile treatment is the face, taste buds, tongue, teeth, jaw, salivary glands and onward. Some side effects resolve over time, some don't. Healthy flesh is transformed into scar tissue, causing complications should the need for future surgery arise. All for a marginal improvement in the probability of long-term survival along accompanied by an acute decline in the quality of life.