Reply to "Unknown Primary"

Dr. Joshi - coming late to this thread but I note in one of your earlier posts that you were seeking to be contacted by patients with an occult primary.

That was my diagnosis back in March of this year, and I've had 2 surgeries. #2 was a modified radical neck dissection, after #1 in January (at that point they still though they were dealing with a Branchial cleft cyst) followed by 31 days of IMRT treatments but, thankfully, no chemo (there was apparently no extra-capsular spread, if that's the word I want, and they felt confident that the surgeries removed the two cancerous lymph nodes). The RT ended 3 weeks ago today.

My medical oncologist tells me that because I tested positive for HPV (and of a certain sort or grade.... was it type 16?.... that is the suspicious one for these types of cancers) he feels that it was more than likely the, or perhaps a cause of my disease. I've never been a smoker, although I have always drunk alcohol as an adult.

Please let me know if there are any other details of my situation you'd like to know about.

And more to the point thank you so much for providing this wonderful internet resource for all of us. I realize that your readership is predominantly UK-based, but we're also fans here across the pond.

Best.
david
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