Reply to "Unknown Primary"

Maybe I am a bit late to enter this thread as it's been a while since any post so my experiences may be too late now anyway.


My secondary was found (lump to side of neck) and after 3 FNA test found to be malignant but no sign of primary.

I then had MRI scan with no result followed by a combined pet/ct scan which resulted in no primary found.

I was being treated under the barts MDT. At their next meeting they recommended removal of both tonsils as the most likely site of the primary. Although as far as i know they did no tests (fna etc) to the tonsil.

Fortunately for me the tonsil, or one of them at least turned out to be the primary.


WAS I JUST LUCKY in this outcome, certainly i no longer have the worry no primary and for that i am very grateful.
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