Reply to "Unknown Primary"

Join the guideline development group for metastatic malignant disease of unknown primary origin
(Closes 3 March)
quote:
Applications wanted for patient & carer members on this clinical guideline development group
The Patient and Public Involvement Programme and the National Collaborating Centre for Cancer are looking for applications from patients and/or carers to sit on the group developing a clinical guideline for metastatic malignant disease of unknown primary origin. It is likely that the guideline will look at tests and imaging investigations in people who are found to have metastases (spread of cancer) but in whom the primary site of the cancer is not known or not immediately obvious, and will consider treatment of people in whom, even after appropriate investigation, the primary site of the cancer is still unknown.

Patient/carer members of this group will play a key role in making sure that patients’ views, experiences and interests (and those of their carers) inform the guideline's development and its recommendations to the NHS.

All members of Guideline Development Groups have equal status, which reflects the relevance and importance of their different expertise and experience. They include health professionals and researchers as well as patient and carer members. All Group members need to attend regular meetings and undertake background reading.

We would welcome an application from you if you have:
  • experience or knowledge of metastatic cancer of unknown primary origin, for example, as someone
    - who has had this themselves or
    - who is the relative or carer of someone who has had it or
    - who is a policy officer from a relevant patient organisation
  • an understanding of, and a willingness to reflect, the experiences and needs of a wider network of relevant patients (perhaps as a member of a support group or patient organisation)
  • time to commit to the work of the group: attending meetings, background reading, commenting on draft products etc.
  • good communication and team working skills

Health professionals will be well represented on the group so we are looking for someone without a health professional background.

Patient members of Guideline Development Groups are paid an attendance fee and travel expenses are also reimbursed. The Patient and Public Involvement Programme will provide patient/carer members with dedicated and ongoing support throughout their time on the Group.

For further information about what the role involves and other relevant information please use the link below:
Applications wanted for patient & carer members on this clinical guideline development group
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