If I had not had the surgery I would not be here to write this now
I was offered surgery or palliative care.
I am not going to lie and say it has been easy,it has been a long road to recovery.
I still get tired quite easily and the nature of my surgery I tend to suffer with a lot of chest infection.
And I still have some aches and pains.
There are a few things I can't physically manage anymore
I can't swim (neck breather) I would drown.
I had to give up work and I had a good job,a job I loved doing.
I can't walk far before I start to cough or my leg pain starts (muscle and fat taken from top of leg to reconstruct the floor of my mouth)
If I could offer any advice it would be to take any help the hospital offer you,also get referred to the psychology department. They can help on the road to recovery.
I still have a lot of hospital appointments and I am 3 years post op in April.
Quality of life is not as bad as I first imagined when I was told about the surgery.
I get out and about when I can,even had a couple of small family holidays.
I agree it easy for surgeons and consultants to advise what is best for you,like you say it is not them living the life following surgery.
I did have a peg tube fitted as all my food was in liquid form.
I had my peg removed roughly a year after surgery.
I can manage a very soft food diet,blended or mashed to baby food consistency and I am happy enough with what I can eat (peanut butter and jam ice cream milk shakes are my current favourite)
All of my medication needs to be disolvable or liquid.
All of these seem like a small price to pay for me to be able to spend more time with my family.
Like I said it's not easy but it's not that difficult either.
So as you can see there are a lot of pro's for me and a few con's
I am pleased I am still alive
And if I had to do it again?? Absolutely,it's a no brainer for me.
My regrets are catching the awful disease in the first place.
And if I could ask a crystal ball anything it would be how long have I got left?
After my treatment ended in 2014 I had a biopsy in 2015 to determine if treatment had worked
I was told all looks good no signs of cancer.
It was 6 months later I became symptomatic again and 3 months after that I was given the choice between op or palliative care
So now I am 3 years post op every single day is a bonus for me.
I hope some of this is helpful
And please feel free to keep asking me questions
If I can help I will.