Reply to "peg feeding leaks again!"

Greetings. My life has been simply a nightmare, I had a PEG size 26 French for quite a long time. The leaking from my stoma got worse and worse. The hospital suggested we go down a couple of sizes; and I now have a 20 French PEG. I have lost all IV access, so I can only have a balloon PEG. But the leaking is starting to degrade my skin, and I need to have gauze under my bolster - I need to clean it multiple times a day - my laundry basket is overflowing with soaked clothing. I fear to leave our house. I've tried everything the hospital has suggested, but the leaking is so bad that I can not feed, when I drink a cup of tea it immediately starts to pour out. The last couple of days my skin has started burning so badly I can not sleep, plus my skin which is bright red, raw and bleeding, is causing a lot of pain and itching. I'm desperate to find a solution! It's totally depressing, and it's getting worse every day. Don't know what to do any more.....
×
×
×
×