Reply to "Part of my story"

Dear Emmy,

I am keeping my fingers very well crossed for you and hoping for a year's all clear - with many more to come.

Southampton General. Yes. Consultant told me very much as he had told me two months ago. The most recent MRI showed no signs of cancer, but the only way to be absolutely sure would be to take a biopsy - but take a biopsy of what? The fibrosis just continues to get worse - but can sometimes just stop, for no good reason. They keep the victim going for as long as possible until the eating and swallowing get too difficult, then it is a PEG tube (the last thing I would let them do would be an NG tube - I made that very clear and was told they wouldn't even consider it). The next thing it could affect is the breathing and if that got too bad it would mean a tracheotomy - nice - but my breathing seems to be OK, touch wood. They said I seemed to be taking it pretty well, to which my reply was that it was no more than I expected and it was not as bad as being told one had cancer, thank you very much.

I spent a long time with the Dietician and Speech Therapist - both very thorough and helpful, and determined to keep in touch. I had the option of staying with 'the team' or following the Speech Therapy thorough Winchester. Winchester is closer and the car park is cheaper. Both car parks are about impossible to get into. Don't really like Southampton, but they have been very good to me and the whole team is down there - and once you are on their books they never lose track of you. I hadn't seen that Dietician since the radiotherapy days - and we remembered each other well! Me, well know as the 'bolshie one'!

Of course, by the time I got out of there it was pitch dark, rush hour and drizzling - perfect driving conditions for one who thoroughly dislikes night driving.

Hey ho! I have talked so much that my tongue is very stiff and painful, but I must keep exercising it. There is little enough movement in it as it is. It is a silly fact that the drier my mouth is the better I am able to talk. If saliva builds up I end up dribbling and blowing bubbles. Yes, the mind boggles...

Life's a bitch - then it has puppies.
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