Alex had 3 lots of treatment called debridement.
This was was removing the necrosed bone down to healthy bone and then you just have to hope it works. Sadly for Alex it didn't and eventually the bone became to brittle it fractured.
Alex is still in hospital recovering from surgery,it is huge surgery but I am hopeful this will be the turning point. Alex saw a speech and language therapist yesterday as he has swallowing issues.... Another problem from RT, this lady suggested he try peg feeding for a few months to help address his weight loss of 4st. FINALLY someone is listening and going to help.