Reply to "Osteoradionacrosis"

Lincoln & Rotherham have centres and they are under 50 miles from Hull. I agree it is very is hard when you have to do it all yourself. I feel very let down by my hospital - the consultant put me forward for HBOT on NHS in January 2013, but someone in the hospital failed to make the application. At that time the local health board were paying for patients to attend the MS therapy centres to have HBOT. By the time the hospitals failure to apply was noted and another application was made it was after April and the policy had changed - HBOT was finally approved for me but I had to go to either Cardiff or the Wirral - both almost 90 miles away. I also have ME so there was no way I could drive myself there for one trip let alone 5 days a week for 4 weeks. So I went myself to Hereford MS Centre which is half the distance and I'm sure it was that that helped the ORN to settle down. They are lovely there and there are people going with all sorts of condition not just MS including ORN & cancer. I have just heard that I have an appointment at the Wirral at the end of this month for a consultation re HBOT - that 1 year and 3 months after the consultant asked for it for me. If I hadn't taken it upon myself to get some HBOT I don't know how I'd be now.
Good luck
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