Reply to "Osteoradionacrosis"

I'm still getting used to the site and I only found out that you can have notifications sent to your email when someone posts to the topic.
Most people I know who have had ORN have gone to a MS therapy centre - they charge around £12 (Hereford - where I went) to £15/£20 a dive. Its getting harder to get it on NHS for ORN in England - Shropshire Health Board have definitely stopped funding for it and you have to go through all sorts of appeals & it takes ages. Wales is a little better but the application for funding takes ages - meanwhile the condition could be getting worse. I've met a few people who refused RT & chemo and have had oxygen therapy and done other things like change their diet etc. I think with the oxygen people have it every day for 3 or 4 weeks then try to go once a week.
There's a map here showing all the MS therapy centres in UK http://www.msntc.org.uk/centresearch.php - maybe there's one not too far from you littlerosie.

When they say that you may get dental problems in the future no one would think that this meant that your jaw bone starts dying! Dental problems to most people would mean having to have false teeth at the worst. If I'd have known about ORN I would have opted to have all my teeth out prior to the RT (or in hindsight probably wouldn't have had the RT.
Take care
×
×
×
×