I was not told about the risk of ORN either Valerie. In fact I have not heard of anyone who was. It seems so odd that patients are required, prior to RT, to sign a consent form with a list of side effects noted, including the less debilitating short term ones like nausea, yet very serious side effects like ORN are not even mentioned. It's almost as if there is a 'conspiracy of silence'. To my mind, if patients are not told about this side effect they cannot have given informed consent. Just my view and difficult when I'm just happy to be alive. Apparently the survival rate for my type of cancer (unknown primary) is 35% - 50% beyond 5 years. I am now 5 & half years since RT.
What region of the country do you live Valerie? - there may be a MS therapy centre near you where you could access oxygen treatment. Many consultants would not do extractions without the patient having oxygen treatment 1st (20 before/10 after extraction). Good luck and let us know how you get on.