Sorry I haven't been back on the forum for a while. To answer some questions I was diagnosed with ORN following tooth infection and severe pain. I have gum disease and receding gums and I think the infection got in due to that. But the bone has obviously been severely compromised by the radiotherapy. I was on anti-biotics for several months. I started having oxygen treatment with an MS therapy centre and things have settled down. My consultant wanted to take the tooth out, but another consultant said it would be more risk to remove the tooth as trauma to bone can start of osteoradionecrosis.
I live in Wales and the Welsh health boards will may for oxygen in special circumstances. I have waited over a year for this to be organised and still not started it.
NHS England has recently produced a document about oxygen treatment for osteoradionecrosis it states the in Europe oxygen is strongly recommended, but England states that there is not enough evidence. Interestingly pharmaceutical companies were represented on the board who wrote the report! hyperbaric oxygen treatment does not give profit to the big pharmaceutical companies and would very likely to be a much cheaper option for the NHS than expensive drugs, invasive surgery etc.
Although things have settled down ORN is a constant worry as it could flare up again at any time.
Glad that your husbands is doing ok now Penny. x