I think this sounds a really interesting project. I wasn't sure from your post if you were looking for suggestions from us or if you are going to produce something like a questionnaire to which we can respond to. I am happy to do either (or both!)
I have all sorts of ideas as to why internet forums are so helpful to cancer patients in general and to head and neck patients in particular. Can say more about this if you want, but not tonight as I am too tired, having just got back from a week's holiday.