from the Rarer Cancer Forum's message board , Laura said:
quote:I have to say I was very disappointed with the help I received from the government. I also had to travel at least 10 days in every 21 to hospital for treatment, and was not given any help with transport. I had not been at my new job long enough for them to pay me SS pay, so was told I would have to apply for Incapacity Benefit and Disability Living Allowance. I was not entitled to IB as they had used my years at university to calculate my NI contributions, as I didnt have a job while I was at university I had not paid enough - to be honest, its not something a student thinks about at the time, as I lived at home and off my student loan and wasn't on benefits or anything, I didnt need a job. But if I had known it would come back and bite me on the bum later things might have been different, but it just felt like I was being punished for studying.
As for the Disability Living Allowance, I did qualify for it but at the time I had applied I hadnt been sick for more than 6months so could not have that either.
So I got no benefits or help for being sick, the only thing I they would give me was Income Support (I think they had to give me something), which was £35 a week. £35 for petrol, and as I'm sure you'll all know the other costs of having treatment, foods, vitamins etc.
My mum gave up her job to care for me, because I couold do nothing myself because my treatment was so intense, I was just too weak, but she couldn't get a carers allowance either.
Oh but I did get a blue badge. So I was disabled enough at the time to have a blue badge, but for nothing else. Its crazy, this country stinks, all I can say is I am glad I had such a supportive family around me. I just didnt think it was fair that they had to pay for me and everything I needed. Its not like I asked to be ill or was feigning it. I wasnt planning on being off sick for the long term, I'm going back to work in September, 10 months from diagnosis, because I don't want to sit around, I could probably stay off longer because I have nerve damage in my hands and feet, but I wasnt brought up like that.
I'd just like to know how ill you have to be before this country helps you. I hope you have more luck than I did.