I found that I actually had to demand certain types of therapies. Not that primary doctors weren't wonderful. But I constantly had to inquire about new and different treatments.
A huge thank you to you Dr. Joshi, most people don't understand this type of cancer. And we tend to recede from public because of all the new diabilities we have. I know it is harder for me to accept than for some of my friends. But the outside world just stares at me when I talk. I say something to them if they could understand it.