After jaw removal, neck dissection and two futher remidal operations (last one nine weeks ago)I don't know how I am going to fare for work. Still have RT to face and so obviously don't know how that is going to affect me either. Have bad facial disfigurement,restricted movement in my neck, left arm will not lift more than half way, speech not good, very hard to make myself understood by telephone, walk with stick (nerve damage to foot when removing bone to replace jaw)cannot eat, am still peg fed and have a constant drool. I know this will disapear with RT, but at the moment could beat any perve in a dirty mac hands down! Then of course we all know about the fatigue we all try to overcome!
Benifits here in Ireland are slightly different from the UK. At the moment I receive E185.00 a week Illness benifit. I have applied twice for Invalidity Benifit where you get the added bonus of a bus pass (helpful when going for appointments and treatment)(I dont trust myself to drive safely yet)fuel allowance, phone allowance and a few other bits which add up to be very helpful) but have been refused twice. At the insistance of my local Social Welfare office I have applied yet again. Watch this space!
Mentally some days I feel if I am losing brain power altogether and sometimes wonder if I am going to end up cabbaged. It's great to visit here and find that I'm not the only one going through this and there are success storys and light at the end of the tunnel.